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Dementia research

The Research Institute for Disabled Consumers is currently carrying out research with local groups of people with mild to moderate dementia. Based on this experience, we can offer a UK-wide research resource involving consumers with dementia.

Dementia research programme

ID logoWe are working with Innovations in Dementia on research involving people with dementia in a programme of local and national projects, providing feedback and insight on products, services and environments. People with dementia are often an 'invisible' consumer group.

How this important development can help your research:

  • In partnership with Innovations in Dementia and local DEEP dementia groups, we'll work with you to design practical consumer insight and development projects that have real impact.
  • This initiative provides an important new UK-wide consumer research resource for businesses and organisations.
  • The learning from this innovative research programme is being supported and promoted by the John Ellerman Foundation.

Local projects

Accessible transport, Belfast

Our research in partnership with iD and Dementia NI and Translink in April 2018 was to gain feedback on how accessible public transportation facilities are for people with dementia. The research was conducted at the Europa Bus Centre and the Great Victoria Street Railway Station complex in Belfast city centre. Read the report: How accessible are transportation facilities for people with dementia? A view from Belfast

Financial lasting power of attorney, West Berkshire

Working in partnership with the West of Berkshire DEEP group and Irwin Mitchell LLP, we found out what the experience of getting a financial lasting power of attorney (LPA) was like for people with dementia and their partners and carers. Our research points to the importance of understanding LPA, whether it's for yourself, for another person, or when your work brings you into contact with people who have LPA. Read the financial lasting power of attorney report.

People with dementia using taxis and minicabs, Camden, London

In partnership with the Camden Minds DEEP group based in the London Borough of Camden, we carried out research with four people to investigate minicab and taxi services. March 2017.
Read the taxi report.

Mecca Bingo, York

We visited Mecca Bingo in York with the local DEEP group, York Minds and Voices, where we looked at how their experience can help produce recommendations on how bingo halls can best accommodate people with dementia. February 2017. Read the bingo report.

RSC Theatre Stratford-upon-Avon

In partnership with the Friends Together DEEP group based in Redditch, Worcestershire, we worked with the RSC to evaluate theatre environment and performance at their Stratford-upon-Avon home. August 2016. Read the theatre report.

Leeds Citybus

An investigation of a proposed Next Stop Announcement system to find out whether it can improve journeys for people with dementia. The investigation was carried out by the Bradford DEEP group in partnership with First Group's Leeds Citybus.  January 2016. Read the bus report.

Huguenot Museum, Kent

Our first local project, where people with dementia from the local DEEP group Memorybilia visited the Huguenot Museum in Rochester using a mystery shopping approach. December 2015. Read the museum report.

National Projects

Completed research projects include:

  • Usability testing of central heating programmer / thermostat unit - colour contrast  (Hive Active Heating). In partnership with SUNshiners DEEP group in Dover.
  • Workshop to collect feedback on utility billing and other financial information materials (British Gas). In partnership with the Forget-me-nots DEEP group in Canterbury and Mindcare Dementia Support in Lewisham.

More dementia resources

Lorraine Brown of Memorybilia gave a speech about living with dementia at Rica's second Research Exchange in June 2016

To discuss or commission research from the Research Institute for Disabled Consumers, contact Caroline Jacobs, Co-Director.

Last updated: May 2018